Category Archives: LORI
WHEN YOU DON’T FIT IN THE “NORMAL,” MEDICATION MOLD.”
My doctor and I discussed my medication before surgery, I thought all was well.Continue reading WHEN YOU DON’T FIT IN THE “NORMAL,” MEDICATION MOLD.”
WHEN THE GOOD MEMORIES CAN’T BE FOUND
The hardest words a mother can ever hear are, “I have no memories of you ever being healthy. “Continue reading WHEN THE GOOD MEMORIES CAN’T BE FOUND
HAPPILY EVER AFTER INTERRUPTED
When my husband Michael and I were married on April 20, 2002, we thought our lives would be perfect.
Within two years of being married, we bought our dream home and we had our son Jacob on February 15. 2004. My life seemed wonderful. I was loving my personal life and professional life as a 4th grade teacher. Then I turned 30 and my life changed, or as I often say,”turned into my personal Hell.”
My birth defects in my hips and spine were identified, surgeries began to pile up, and I was forced to retire. As the years progressed, I began to see specialists who had no idea what to do for me. Finally, I was identified as having many markers of hEDS, so they began treating me as if I do even though they can’t say indefinitely what I suffer from. They can’t explain why I swell, why my body turns colors, why my tissues eat themselves and bones refuse to heal. My perfect life I thought would be my happily ever after is gone. I have my sad moments, a lot and often. But instead of hiding and burning my head, I am happier to use my stories and strength to fight and educate others about living with a chronic illness. To join forces support one another, and look for answers.
WE WOULD NEVER ASK YOU TO WALK A MILE IN OUR SHOES. NO ONE DESERVES THIS…
Come and join us down the illness rabbit hole. Where we will share our journeys through this life as ill and disabled people in an abled world. We met through a mutual commitment to fighting for children of Vietnam veterans whose medical issues are attributed to or presumed to be from their parents exposure to Agent Orange in Vietnam. Through our activism a friendship grew. Together we are a powerful force to be reckoned with.